121![Happy Spring from the National Niemann-Pick Disease Foundation! March 2012 NNPDF 20th Annual Family Support and Medical Conference Happy Spring from the National Niemann-Pick Disease Foundation! March 2012 NNPDF 20th Annual Family Support and Medical Conference](https://www.pdfsearch.io/img/53bc6da95a226e9eaa9811b7ca96460c.jpg) | Add to Reading ListSource URL: www.nnpdf.orgLanguage: English - Date: 2012-03-28 16:58:24
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122![National Niemann-Pick Disease Foundation 401 Madison Avenue, Suite B Post Office Box 49 Fort Atkinson, WI[removed][removed]; Fax[removed]E-mail: [removed] National Niemann-Pick Disease Foundation 401 Madison Avenue, Suite B Post Office Box 49 Fort Atkinson, WI[removed][removed]; Fax[removed]E-mail: [removed]](https://www.pdfsearch.io/img/c79825a5525425540b0eb761ba9d95f6.jpg) | Add to Reading ListSource URL: www.nnpdf.orgLanguage: English - Date: 2010-12-16 10:25:03
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123![National Niemann-Pick Disease Foundation, Inc. P.O. Box 49; Fort Atkinson, WI[removed]USA) Tele: [removed]; Fax: [removed]Web Site: www.nnpdf.org Email: [removed] MEMBERSHIP FORM National Niemann-Pick Disease Foundation, Inc. P.O. Box 49; Fort Atkinson, WI[removed]USA) Tele: [removed]; Fax: [removed]Web Site: www.nnpdf.org Email: [removed] MEMBERSHIP FORM](https://www.pdfsearch.io/img/ab0836594eb70c55676ccaf23be611c0.jpg) | Add to Reading ListSource URL: www.nnpdf.orgLanguage: English - Date: 2014-04-14 18:10:54
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124![Niemann–Pick disease / Email / Niemann / Lipid storage disorders / Rare diseases / Health Niemann–Pick disease / Email / Niemann / Lipid storage disorders / Rare diseases / Health](/pdf-icon.png) | Add to Reading ListSource URL: www.nnpdf.orgLanguage: English - Date: 2013-11-14 12:40:45
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125![Freya Davison-Hulme 23 January 1998 – 26 February 2005 We lost our beautiful daughter, Freya, suddenly and unexpectedly in her sleep, in February 05. Freya had Niemann Pick Disease Type C. She was totally adored; the Freya Davison-Hulme 23 January 1998 – 26 February 2005 We lost our beautiful daughter, Freya, suddenly and unexpectedly in her sleep, in February 05. Freya had Niemann Pick Disease Type C. She was totally adored; the](https://www.pdfsearch.io/img/05091fc641a03ed6e79517cecd4a44b0.jpg) | Add to Reading ListSource URL: www.climb.org.ukLanguage: English - Date: 2014-03-20 12:23:37
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126![Support Accelerated Approval of Drugs for Ultra-Rare Diseases to Benefit Vulnerable Patients, Promote Biotechnology Innovation and Stimulate Job Growth in the United States January 4, 2012 The Honorable Fred Upton, Chair Support Accelerated Approval of Drugs for Ultra-Rare Diseases to Benefit Vulnerable Patients, Promote Biotechnology Innovation and Stimulate Job Growth in the United States January 4, 2012 The Honorable Fred Upton, Chair](https://www.pdfsearch.io/img/a88931bb49f028d27a9c37e3be607fbc.jpg) | Add to Reading ListSource URL: www.curesarcoma.orgLanguage: English - Date: 2012-01-06 16:36:41
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127![As of January[removed]Summary of Nominated Conditions to the Recommended Uniform Screening Panel (RUSP) CONDITION Adrenoleukodystrophy (ALD) As of January[removed]Summary of Nominated Conditions to the Recommended Uniform Screening Panel (RUSP) CONDITION Adrenoleukodystrophy (ALD)](https://www.pdfsearch.io/img/33c400554580cefb96342baf3f66c316.jpg) | Add to Reading ListSource URL: www.hrsa.govLanguage: English - Date: 2014-02-08 05:13:35
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128![Ms. Barbara Vorpahl Chair National Niemann-Pick Disease Foundation P.O. Box[removed]Madison Avenue, Suite B Ft. Atkinson, WI 53538 Ms. Barbara Vorpahl Chair National Niemann-Pick Disease Foundation P.O. Box[removed]Madison Avenue, Suite B Ft. Atkinson, WI 53538](https://www.pdfsearch.io/img/5df0ec1973b7da47d7d0a8147c23f99d.jpg) | Add to Reading ListSource URL: www.hrsa.govLanguage: English - Date: 2012-01-07 00:54:20
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129![November 22, 2013 The Honorable Patty Murray, Co-Chair The Budget Conference Committee 154 Russell Senate Office Building Washington, DC 20510 November 22, 2013 The Honorable Patty Murray, Co-Chair The Budget Conference Committee 154 Russell Senate Office Building Washington, DC 20510](https://www.pdfsearch.io/img/59225dd30a6857eb88838517217b6bbb.jpg) | Add to Reading ListSource URL: www.rarediseases.orgLanguage: English - Date: 2013-12-06 10:56:30
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130![Consumer Health Information www.fda.gov/consumer Rare Diseases Take Spotlight in Annual Event Consumer Health Information www.fda.gov/consumer Rare Diseases Take Spotlight in Annual Event](https://www.pdfsearch.io/img/2a9bdfb554abeab7ca53b7ac900a6b26.jpg) | Add to Reading ListSource URL: www.fda.govLanguage: English |
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